by Sopra » Thu May 06, 2010 4:08 am
This board has been a huge help since I got this disease two months ago.
The best advice I've found for healing and for avoiding constipation is to drink whole-leaf aloe juice or gel. I mix it with SmartWater juice, 2 oz. aloe with 4 oz. juice. When I was at my worst, I had it twice a day, and once I started getting better I had it at bedtime only. I have it every evening, preferably on an empty stomach. The stuff is somewhat expensive--$8 for a 32 oz. bottle. It's in the refrigerated section of your natural food store. I've been using Lily of the Desert brand gel and, since it works, I'm sticking to it. The juice works almost as well, but I find the gel to be better. It coats and soothes your intestines and moves things along nicely. (It does not interfere with absorption of nutrients; in fact, it's supposed to enhance absorption.)
Another helpful food is Pepperidge Farm Whole Honey Wheat Smooth Texture bread. It has a good amount of fiber in it, but it's so finely ground that it won't irritate your colon. Be sure to toast it first and chew it well, though. (I didn't realize how hard untoasted bread was to digest until I ate it during my attack.)
Well-cooked (that is, overcooked) baby carrots and peeled zucchini--perhaps in broth, with or without egg noodles--will also give you easily digestible fiber, and is very comforting to the stomach as well.
In addition, avoid caffeinated beverages--tea as well as coffee--and drink a lot of other liquids to help prevent constipation and painful spasms. If you keep a log of everything you eat and drink, you can really tell what is good for you and what isn't, and I learned that tea and coffee definitely dehydrate and harden stool. I can't do without them, so I drink them early in the day and am careful to drink much more herbal tea (such as the robust-tasting Roastaroma or Gingerbread Spice) and water or SmartWater juice the rest of the day, especially between dinner and bedtime. If I don't follow this practice, I'm very sorry the next morning!
I could not adapt to fiber supplements--even a single Benefiber chewable tablet caused me pain and irritation, and more than one would result in a little diarrhea without really solving the problem. I'd been a vegetarian for 15 years before getting this, so I agree with other posters that a high-fiber diet is not a guarantee against or a cure for this illness. (I clearly got it because I added too many nuts and seeds to my diet.) I take probiotics with breakfast and have a nonfat yogurt smoothie (with a mix of fruit juice and Smartwater juice) later in the day, and they may be part of what keeps me from being constipated on a low-fiber diet.
It can be done! Forget about dosing yourself with supplemental fiber, and think hydration and lubrication (with the aloe) instead. Also, perhaps obviously, don't eat too much at a single meal. Alternate solid with liquid meals during flares if you can. Nonvegetarians can have meat broth, perhaps with a few noodles. Well-stirred Carnation Instant Breakfast is a nutritious option; you can make it with half nonfat milk, half nonfat yogurt.
Good luck to us all--this is a tough ailment to live with.